Over the past few months I’ve been having quite the flare up. The word “discomfort” is an understatement, but we’re getting toward managable territory again. March and April were no fun at all. You know those moments when you hurt so bad that you wonder where the nearest ER is at all times? Yeah.
For those readers unaware, I have an eosinophillic disorder that came on back in 05′ and really turned my life upside down. Once again, no fun at all. If you want to know more about folks with eosinophilic issues click this link. Not much research is being done on the issue, we’re one of those rare disorders. So, if you get the urge to donate to CURED it would be greatly appreciated.
Frankly, I don’t talk to much about the issues on the blog any more. I’ve learned to live with the issues, and mostly I focus on what’s in front of me each day (also, photos and Photoshop talk are more fun). I stay away from the doctor as much as possible, but I do go when the physical pain gets beyond my ability to control. The last few months we hit that little emergency button, and I’ve had some visits with my local doctor.
The other day I got one of those ominous call backs to the physician, and I’m not embarrassed to say it scared me a bit. More than a bit…..just the tone on the phone, and calling me back before our next scheduled follow up. All the standard worries started going through my mind again……it happens.
Fortunately, the issue discussed today wasn’t a big deal. Well, it is a big deal, but something I’m used to. Severely elevated white count (I haven’t had a normal white count in years), and eosinophils to spare for several villages worth of people. I have too many eosinophils, and I’d be happy to spare some. The physician was concerned, but once he read off the numbers I was relieved. Just more of the same from my point of view. Nothing new and scary, just the same old scary thing that I’ve become accustomed to.
We’ve agreed, a new course of steroids is due, another outpatient morning scoping (read yuck), and a few other measures. It’s funny, often I forget about the issue and leave it as the background noise of life. But when a bad flare pops up it reminds me, there are a few limitations placed on me now. No worries, I’ll keep working around them!
So, just here to breathe my sigh of relief and do a little blog therapy. In a few months I’ll be running at 100% again I’m sure. In the meantime, grin and deal. 🙂